The National End of Life Survey will be launched on Tuesday 28 March. This will be the first national survey asking bereaved relatives about the care provided to a family member or friend in the last months and days of their life.
The purpose of the survey is to learn from people’s experiences of end-of-life care in order to improve services.
Those who registered the death of a family member or friend that occurred between Friday 1 September and Saturday 31 December 2022 will be invited to take part. They will receive an invitation letter and a survey questionnaire in the post between March and May 2023.
You can view the survey questionnaire on yourexperience.ie.
Participation in the survey is voluntary and it will take approximately 30 minutes to complete.
We are hosting a series of webinars about the survey between 23 March and 1 April:
- Register for the webinar on Thursday 23 March at 3pm
- Register for the webinar on Tuesday 28 March at 11am
- Register for the webinar on Wednesday 29 March at 10pm
- Register for the webinar on Saturday 1 April at 2pm
These webinars will provide information on the survey for staff working in relevant end-of-life care areas.
A project team from our Operational Performance and Integration division led by Aileen Killeen is working on the survey, along with the Health Information and Quality Authority (HIQA), the Department of Health and a range of HSE service areas. You can contact the project team at NCEP.OPI@hse.ie.
HSE National Director of Operational Performance and Integration Joe Ryan said:
‘‘This is an important survey which will allow us to learn from people’s experiences of end-of-life care in order to improve the services provided both to people in the last days of their lives, and to their families and those close to them.”