Myalgic Encephalomyelitis (ME) is a serious, long-term complex disease that affects multiple body systems and can greatly reduce a person’s health and quality of life.
ME has historically been described and named in inconsistent ways. Currently, there is no agreed Irish guideline for diagnosing, treating, or managing ME, and approaches vary worldwide.
In 2025, Ireland’s Health Service Executive (HSE) received funding to create the first HSE National Clinical Guideline for ME.
The new guideline will aim to improve understanding, diagnosis, treatment, and management of ME in Ireland, resulting in quality care for people living with ME.
The guideline will be useful for:
- Health and social care workers in community and hospitals services
- People with ME (of all ages and severity levels) and their families and chosen supports.
- Advocacy groups supporting people living with ME.
- Policymakers planning services and funding.
Lived Experience Groups
It is important that this guideline is informed by people living with ME and those who support them. You are therefore invited to join an online Lived Experience Group to share some of your personal experiences of living with ME.
For more information, please see the Information Leaflet.
Myalgic Encephalomyelitis Information Leaflet (PDF, 88 KB, 2 pages)
If you would like to take part, please email me.clinicalguideline@hse.ie.